Urea Cycle Disorder
Links
Urea
Cycle Disorder Discussion Board This
site is for those affected by any of the Urea Cycle
Disorders. It is hosted by and for families of kids
with UCD's.
UCDKids
Here's the spot that links our
UCD discussion boards together.
True Kids website. This website has a
discussion board for UCD kids having liver
transplants. Not only is it a good site for support
after the transplant, but it is a good place to ask
questions before the transplant so you will know what
to expect.
Citrullinemia
Discussion This site focuses on
those with citrullinemia, which is another form of a
UCD.
Argininosuccinic
Aciduria Discussion This site's discussion
is targeted at those dealing with the ASA form of
Urea Cycle Disorders. This page also has a link
outlining the proper way for a blood
ammonia level to be drawn.
Tyler for Life A wealth of information on rare
disorders, metabolic problems, and newborn screening.
NUCDF National Urea Cycle Disorder
Foundation is a non-profit group with links to
information on UCD's.
